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A Mother’s Courage

May 6, 2009

Last month, Diana wrote, “Cancer is a crazy thing. What works for one kid might not work for another. That is a painful lesson that most of us parents learn through this process. You follow your instincts and you have to trust in your faith and yourself. In the end, that is the only thing that gets you through each day.”

 

Noah was given a new experimental drug a few weeks before Mother’s Day. The drug, named MLN8237, is given on a three week cycle, for seven days straight, then off for two weeks. Scans are taken every six weeks, blood counts on days 1, 4, and 7 during the week of the medicine, once a week on the weeks off the drug.

            His mother, Diana, wrote that “this is a hard process.” The drug is a stronger version of Valium, which will make Noah sleep longer than his already-long twelve hours a night. His counts will drop but hopefully, the drug “will stabilize the rest of of the disease and keep it from spreading.” Dr. Mody and Dr. Yanik from the the University of Michigan C.S. Mott Children’s Hospital believe that within the next 3-5 years, MLN8237 may be used as standard protocol for newly diagnosed kids with Neuroblastoma.

            Diana prays that Noah will make it to 5 and then live for at least another 3-5 years. 25 months ago on www.carepages.com, she wrote that “Noah finished his second round of chemo.” Since then, she has been fighting the daily battles of a mother dedicated to giving her son the best, longest life that she can. The cycle is this: another round of chemo and another prayer for life.

            Noah’s mother works for Pella and somehow manages to work between 40-70 hours a week while taking care of Noah. She doesn’t complain. She is thankful for every moment she gets to spend with her little boy who loves dressing up as Spiderman. Noah sees himself as the young, courageous superhero, fighting against Cancer, the bad guy. His mom, herself a courageous hero, is just happy to be a mother on Mother’s Day, able to devote her life to a boy who would not be here without her.  

            Diana was told two years ago that Noah would probably not survive beyond the next six months. She listened sadly to the advice of that cancer doctor and then went to another doctor from U of M who told her not to give up. Dr. Yanik promised to do everything in his power to save her son’s life.  

            Last month, Diana wrote, “Cancer is a crazy thing. What works for one kid might not work for another. That is a painful lesson that most of us parents learn through this process. You follow your instincts and you have to trust in your faith and yourself. In the end, that is the only thing that gets you through each day.”

            Diana usually ends her www.carepages.com entries with “Thank you for the prayers. Keep them coming!” On this Mother’s Day, pray for mothers like Diana who have to battle to keep their kids alive. Pray that she will get a Mother’s Day gift that so many other parents take for granted, which is simply to have a healthy child.

           

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